Just diagnosed

New to POTS, long COVID, ME/CFS or dysautonomia? Start here: what the diagnosis means, the tests, the first treatments, and how to begin tracking.

Where to start

A new diagnosis of POTS, long COVID, ME/CFS or dysautonomia can bring relief and a lot of questions at once. Relief, because there is finally a name for what has been happening. Questions, because the name does not come with a manual.

The good news is that the first steps are well understood. For POTS that usually means more salt and fluids and compression garments, and for all of these conditions it means pacing to stay out of crashes and slowly rebuilding what your body can handle. Medication helps some people, and it works best on top of those basics.

It also helps to start tracking early. A few weeks of morning readings and notes on how you feel give you and your doctor something solid to work from, and they make progress visible when it is hard to feel.

Start your record now, before your next appointment.

A few weeks of morning readings and stand tests give your doctor something real to look at, in a summary you can bring.

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Newest on Just diagnosed

All 12 answers →
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POTS · 11 min Autonomic Function Tests: What to Expect at Autonomic Testing Referred for autonomic testing and not sure what happens? Here is a plain walk through the standard autonomic reflex screen: the deep breathing test, the Valsalva maneuver, the tilt table, and the QSART sweat test, plus how each result is read. Read the full answer →
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POTS · 10 min Tilt Table Test: What to Expect and How It Diagnoses POTS and Syncope A tilt table test tips you upright on a motorized table while your heart rate and blood pressure are watched continuously. Here is what actually happens during the test, how it is read, and how it differs from the stand test you can run at home. Read the full answer →
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POTS · 9 min POTS Subtypes Explained: Hyperadrenergic, Neuropathic, and Hypovolemic POTS is usually grouped into three overlapping patterns: neuropathic, hyperadrenergic, and hypovolemic. Here is what each one means, how they differ, and what your at-home stand-test numbers can hint about which pattern is driving your symptoms. Read the full answer →
HRV: The Complete Guide to Reading Your Nervous System
HRV · 6 min HRV: The Complete Guide to Reading Your Nervous System Heart rate variability is the single clearest at-home window into your autonomic nervous system. This is the complete guide: what RMSSD, SDNN, HF and LF actually mean, what moves them, how to measure well, and how to read the trend without spiraling. Read the full answer →
Recovery from Post-Viral Dysautonomia: Turning Data Into Decisions
Recovery · 5 min Recovery from Post-Viral Dysautonomia: Turning Data Into Decisions Recovery from POTS and post-viral dysautonomia is slow, noisy and non-linear, which is exactly why it's so easy to lose hope in the day-to-day. Here's how to pace, read your trends, and turn months of scattered data into decisions that actually bend the curve. Read the full answer →
POTS, Long COVID & MCAS: Why They Travel Together
Long COVID · 5 min POTS, Long COVID & MCAS: Why They Travel Together POTS, long COVID, ME/CFS and MCAS overlap so much that many people are told they have several at once. Here's what actually connects them, how they differ, and which parts of each you can track at home. Read the full answer →
Autonomic · free app

Know what kind of day it is before you get out of bed.

Take a quick heart reading each morning and Autonomic gives you a score out of 100, plus a plain note on how much your body can handle today. So you can plan around a bad day instead of finding out halfway through it.

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The Autonomic Outlook: today scores 92 out of 100, Excellent, with a note on how much the day can take